The PRES / PRINTO / EULAR vasculitides registry is designed to validate the EULAR/PRES Endorsed Consensus Criteria for the classification of the following childhood vasculitides:
1. Henoch Schonlein purpura (HSP), 2. Childhood Polyarteritis Nodosa (PAN), 3. Wegener Granulomatosis (WG) 4. Takayasu Arteritis (TA), 5. Unclassified Primary Systemic Vasculitis (UPSV).
These criteria have been developed by international collaboration. Now they need to be validated with a multinational registry. Participating centres will be required to complete, retrospectively or prospectively, the information on the related internet case report forms for their patients diagnosed with one of the aforementioned vasculitides. Enrollment period will continue for 1 year after the registration of the first patient. Centres willing to participate, will receive a reimbursement of 35 € per patient enrolled in the study. Consent form and/or ethic committee approval will be necessary if required by the national legislation of each participating country. If you are interested to participate you can contact the PRINTO office. The complete set of information (material for ethics committee submission, protocols, consent forms, and internet case report forms) are available, for PRINTO members only, in the reserved Member area on the left.